Hello all--It's Heidi's second week at home now and I stayed up here in Oceanside past few days. Will return to SD and work tomorrow. There have been several necessary in-home visits recently of hospice nurses, caregiver agencies to interview,etc and she is very fatigued last eve and today...Sadly too today, she had an atrial fibrillation episode (still ongoing) which on top of the leukemia is almost unbearable. She is resting now but was very distressed earlier. If it doesn't clear within an hour or so, we will talk again with Kaiser to see  what might be needed to help her.  It is profoundly enervating and overwhelming for her to have to go through this.

And this is the first a-fib she's had in quite awhile, when they used to be much more frequent, so we are thankful for that

 

Needless to say, she needs quiet and rest and love and ease. Period. So no visitors for at least this entire week is the plan and I thank you for hearing that and respecting it in spite of how much some of you miss her and want to see her and give her your love.

 

Her brother Greg has been here for a couple of weeks or so and goes back home to WI on Friday.He has been a stalwart pillar of brotherly care, pragmatic help and love for Heidi..

 

We then will move into a mode of her care being provided by a team including me, a caregiver agency who seem wonderful, and a couple of friends and maybe a fill-in nursing student for back-up, breaks for me,etc...

 

Your thoughts and prayers and loving-kindnesses are welcomed wholeheartedly and appreciated deeply.

 

warmly,

Peter