Tuesday, February 8, 2011

3 months of Hospital completed this coming weekend!

Greetings everyone,

It's amazing how different I can feel from one day to the next.  Had a wonderful time with Peter over the weekend.  Got two 6-7 hour passes from the hospital.  We tried a couple of new restaurants, went to a movie, hung out at his house, and watched the Game on Sunday. I was feeling so good during the Game, for a few hours I completely forgot I have leukemia.  I was able to drive myself back to the hospital that evening for the first time to begin my chemo preparation.  I think the contrast from the weekend "out" and then coming back to a difficult round of chemo got to me Sunday night....I slumped and had to really work on my perspective the next morning.  Felt completely whiped out, emotionally too, so I prayed deeply for some encouragement, some comfort and support as I waited for my lumbar pucture to begin at 1 p.m.  I literally "stormed the gates of heaven".....

Comfort came quickly in the form of a visit from Peter and a couple of doses of Western's best: 1 mg of dilaudid pain killer and 0.5 mg of adavan, a relaxant.  The two worked like a charm.  I hardly remember anything about the puncture, except that I was light-headed AND light-hearted.  No fear or anxiety whatsoever!  Peter was here holding me and I think I even dozed off during the procedure!  After it was done they laid me down and I slept all the way to 5 p.m.  It was magical to see how well the procedure went and that I had such a sense of well being in my body when sleeping throughout the day.  The memory of how well yesterday went is with me still today, as a beautiful response of Grace.  To go from intense anxiety and depression in the morning, to smiles and even cheeriness by evening, is truly remarkable!

This morning I woke up without a headache for the first time in weeks.  My WBC went from 4.7 yesterday to 11.3 today.  Actually, the 11.3 is "high normal" and rarely makes a jump like that in a day.  The doctor says it may point to an infection (perhaps in my lungs), but regardless it is a good sign that my body can produce that level of WBC, he said.  My plateletts went from 150 to 187 -- a really good jump too.  Some Leukemia patients can't get their counts that high ever, I've heard.

I have two more times today that I have to take the potassium pills (they are truly yucky) to keep me in a good heart rhythm -- and two more times of pill form methotrexate, the chemo I'm on during this round.  By tonight they will have me on the antidote for the metatrexate and by Thursday I should be off all IV and thinking about coming home for a week before starting all the treatments over again during my second half.  Peter and I are going to celebrate the half way mark in some way this weekend.

When I was first admitted in November last year, 6 months of the hospital seemed mentally and emotionally out of reach.  I just couldn't grasp the enormity of it.  It is HUGE to have been through all the treatment now, know what's coming and that it should be easier the second time around because, as the doctor said, my "cancer load" is much less (or completely non-existent) right now.   Imagine how wonderful and upbeat I will feel after the next treatment is done and by March I should have just 2 more left.....or six (plus) more weeks in the hospital -- compared to six months!

I'm getting there, my dear friends.  It has been so heartwarming to travel this road with all of you cheering me on.  There have been brief moments when walking out has gone through my mind...never seriously entertained, I might add.  The deeper part of me is committed to going through with everything to give myself the best shot at getting every Leukemia cell.  It will be a new day when I can begin focusing more intensely  on building my body up.  A Naturopathic doctor sent me this website about some research on Vit. D and D3 for cancer, for anyone who's interested:  http://www.vitamindcouncil.org/researchCancer.shtml  There are so many good nutritional things I want to begin to incorporate when I'm in the outpatient phase of the treatment.

I've been painting again.  Feels good. 

Sending my love to each one of you.....

Heidi

6 comments:

  1. attagirl Heidi! adavan is spelled ativan....laughing with you sweetie....

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  2. Dear Heidi, what a great uplifting blog about your experience, I love your upbeat mood, sometimes drugs really are the answer!
    Sending you something in the mail should be there in time for you when you get out this weekend.
    But I am sending you love every day!!!

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  3. and "wiped-out" you must surely be, after all of these treatments.

    BUT..!!!

    >> My WBC went from 4.7 yesterday to 11.3 today. Actually, the 11.3 is "high normal" and rarely makes a jump like that in a day. The doctor says it may point to an infection..., but regardless it is a good sign that my body can produce that level of WBC, he said. My platelettes went from 150 to 187 -- a really good jump too. Some Leukemia patients can't get their counts that high ever, I've heard. <<

    YES !!!....

    >> I've been painting again. Feels good. <<

    ALRIGHT !!!

    such GREAT news, Heidi-ji. ♥

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  4. Heidi!

    Such good news! You have had a great weekend respite, the dreaded puncture turned out to be more than manageable and you are so very well on your way.... with your body responding like a champion. I think that you must have felt so well during the game Sunday because the Packers WON! ♥

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  5. read this post to my mother over the phone...continuing our support and love to you Heidi!

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  6. It's so great to read you in good spirits, Heidi. You're fighting this like a champ. I do hope to visit again when you are back in the thick of it. I'll bring the nature photos next.
    Big Hug to You, Heidi !

    David

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