Sunday, July 3, 2011

Two Months to the Day Since my Last Update -- Happy 4th of July weekend!

My dear Friends and Family,

It has been exactly two months to the day since I last updated all of you.  So much has happened -- I've moved to a beautiful new place, very close to where I had been living (just a few houses down).  My old place of the last few years served me well but had no sunlight or any view whatsoever.  The gift of this new place is that it came up for rent the weekend I came home from the hospital and I was approved within days, given the key a full month before rent was due and could spend a MONTH moving in!  It was gruelling, to be sure, but now that I am in it, I am incredibly happy.   From my bed I can see the ocean very clearly, as well as the mountains to the East.  Panoramic views.  Bright flowers.  Breezes.  Quiet.  3 bedrooms/2 baths for traveling friends and family.  I am smitten with it and so very grateful to be comfortably settled.  I have two beautiful trees in the backyard and am way up on a hill.  It really feels like a mountain cabin.  Please come visit me here whenever you are in the area!

So much news to share....

  • I'm still in remission.  My last bone marrow biopsy was about a month ago and came back clean.  Yeah!
  • Outpatient treatment continues and has been a bit harder than I thought it would be.  I've still needed blood transfusions at times and have had days of weakness rivaling my days in the hospital at times.  But am much more active.
  • Have begun in earnest an organic diet with great supplements that have been proven quite effective for the immune system and work well with standard chemotherapy.
  • Have joined a couple of cancer support groups that have brought me back into community.  Feels very good.
  • I couldn't get the MRD test (referenced in my last updates) as it turned out to be too expensive.  However, I spoke with a genetic scientist who is familiar with my case and has supervised my bone marrow biopsies. He's also a professor at UCLA and an MD specializing in Leukemia. Very credible. He gave me a F.I.S.H. test which showed no chromosomal or genetic abnormalities which are quite common in ALL.  This is fantastic news.  I was smiling for days after my 30 min. conversation with him.  He said that this gives me a very good chance of being in the 39% who achieve a complete cure from ALL, but also cautiously added not to hang my hat on his words.  They always have to say that, I guess.  In my heart, I know I am blessed with healing. 
  • Peter and I went on our first trip last weekend since my diagnosis in mid-November.  Portland, OR...one of our favorite places.  We saw my 93 year old step father, who doesn't feel long for this world, and attended the graduation of my dear friend Bonnie Skakel, who is now a Naturopathic doctor, doctor of Chinese medicine and Acupunturist after 6 years of study.  It was a beautiful, beautiful day.  I also met Peter's son and his son's wife for the first time.  They are lovely people.
The trip fulfilled a deep need in me to travel and explore.  Portland and the surrounding area is lush with Nature spirits, gorgeous views, deep moist vegetation, great food....on and on.  On returning, however, I realized I had stretched past my physical limits and it took the better part of the week to regain my balance and strength.  But it was worth it!



For the first time since learning about the Leukemia I am feeling an inner shift.  I am opening in news ways the the possibilities and opportunities that are here for me creativity.  My hair is growing back (I'll be posting some recent pictures taken in Portland), I still feel that I'm resting in the lap of the Universe, that I'm profoundly taken care of, and my gratitude abounds.

Please feel free to call me or write.  I love hearing from you!  Stay tuned to find out when I'll be having a gathering at my new place sometime this summer!

Heart's Love,

Heidi
P.S.  Peter and I at Multnomah Falls.....

5 comments:

  1. Hi Sweetie!

    It was GREAT hearing from you. YOU look great! Beautiful,courageous, individual, and YOU in your new, chic silver look.It must feel wonderful and free to be able to feel the ocean breeze all around your face now. So glad you are in a place with living things, trees and light and Ocean to keep you company. ♥

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  2. So good to see you out and living life. Maybe some time soon Mary and I can make it to California. I t would be great to have an Acai bowl at Swami's with you. Hang out like old times.

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  3. By the way a day at the beach may be in the running also.

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  4. Thanks for updating post-trip - sounds wonderful, and I'm glad you went for it, despite the recovery time involved. Wonderful photos! I live near Portland, but have never been! Please give us in the loop - and can you update us on your address? Love, Al

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  5. Beautiful Heidi, loved reading this update, and hearing the wonderful news! You look so beautiful and so radiant, what a trip but you look so rich for the journey. Much love dear heart!!

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